Tone of Voice Page 1997/1998

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Hi there! This is our December 1997/January 1998 edition of Tone newsletter. This issue contains a variety of articles. The newsletter's page is planned to be updated regularly. So come back and see what's new.

There are six sections in this issue. You can go to the articles by "clicking" on the coloured "contents" text or using your browser's scroll bar. If you want to give us some feedback, or submit an article for "Tone" please click on the "contacts..." text. Our newsletter addresses are located there. You can also go back to the VCP home Page and locate our E-mail addresses. We hope you enjoy our site and come back often!


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VOICES WITHIN: AN INTERVIEW WITH JACK BARKLEY.

by Laurette Yelle

Jack Barkley was born in Pembrook, Ontario. His one brother, Terry is four years older than he is. Their father was an instructor who taught engineering in the army Consequently, Jack's family moved every three or four years on average. During his childhood they lived in various towns through out the prairies including Regina, Winnipeg and Flin Flon. He remembers the cold prairie winters and the fun the kids had sledding. He tells how one winter in Flin Flon it reached -60, and, not knowing any better, he and Terry went to school as usual even though it was so cold the radio transmitter froze. During the summers the family would come out to camp Chilliwack for a month and a half while his father taught training courses. Jack remembers driving for four or five days with his mother and brother out to the camp from whatever prairie town they were living in at the time. Once they arrived the boys really enjoyed themselves, especially in the camp's theatre.
Picture of Jack BarkleyIn 1958 or 1959, prior to his father's retirement in 1962, his father requested to be posted in Vancouver because Terry wanted to go to engineering school at UBC. Over the years they lived in three houses in the Kitsilano area. In fact, Jack still resides in that area.
Jack attended Kitsilano High School from grades nine to twelve. After graduation he went on to UBC where he received a BA in English. He then  worked as a clerk in the registrar's office. Realizing that his job prospects were not good with a BA in English, he then enrolled in a diploma program in accounting which was open to UBC graduates. After receiving his diploma he had a few accounting jobs. He tried to do accounting work on his own, but his business faltered.
The Cerebral Palsy Association (CPA) was looking for an administrative assistant at the time. Jack applied for the job and was hired. As it happened, Yoshinori Tanabe had received a Local Initiative Project grant to establish the VCP, and had an office at the CPA. Over time he got Jack more and more involved in the activities of the VCP and even got him elected to the Board of Directors of the BC Coalition of the Disabled.
After working as administrative assistant for about three years, Jack then worked briefly, for a retail firm. The day he got laid off, which was just before Christmas, he went to work for Yoshi selling lottery tickets. He sold tickets for a few months.
That spring the VCP received its first Manpower grant. Jack was hired as project co-ordinator of One-Step which was a project to teach life skills to the people from the, False Creek Residence before they moved into the apartment building at East 8th. Avenue. The next VCP project he worked on was one which collected and catalogued information on aids and equipment. It was here that he was introduced to computers. Patrick Clark set up the computer program to organize all the information because it was too big a task to write it all down manually. The next VCP project involved doing a survey on the lifestyles and needs of adults with CP. This project incorporated and built on the computer skills developed in the previous project.
Around this time, about ten years ago, Rick Watson left the VCP. He was Secretary to the Board. Jack then took on this job for both the VCP and Voice of the Cerebral Palsied Housing Society (VHS) boards. He has been doing it ever since.
For four of five years Jack did not have a steady job. He came into the office as a volunteer once or twice a week to do various tasks. Then about four years ago he took over as building manager after George Lee got severe whiplash from a car accident. He received a "baptism by fire" so to speak. Being as green as grass in his new job, he had to go through a nasty eviction of a couple who had totally thrashed their unit. As building manager he screens perspective tenants, deals with tenants' requests and complaints, does the accounting, pays bills, oversees the maintenance of the building, and deals with Canada Mortgage and Housing Corporation.
Jack would like to see the VCP continue and grow because he sees a real need for its services. He believes the income and services provided by the government are inadequate largely because these people do not understand what it's like to be disabled. "The Voice at least provides something of substance to the community, and something of hope to the people who come here", he says.
 

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THERAPEUTIC RECREATION

by Gillian Lawrence

Therapeutic Recreation is made up of many activities such as cycling, swimming, fitness, horseback riding, track and field events as well as handicrafts such as knitting and needlework to name a few. In these pictures that you see, I am trying to convey that the disabled community are able to do anything they want to if they put their minds to  it. I believe that you must keep active, especially physically, to maintain, and even build up, your whole physical well- being.
Therapeutic Recreation must take into account the movement of people who are disabled. If you are Picture of an equestrianworking with a person with a disability, it is very important that s/he have an assessment before s/he does the activity to make sure the person can safely do the activity without injuring him/herself. For example, before a person starts to ride they MUST get a form signed by their doctor. This is to say that the disabled person is allowed to ride. The form is very crucial so that if something happens, then the Centre is not liable if the rider gets hurt.
I believe that Therapeutic Recreation is very important in a disabled person's life. It will help him or her to live their lives to the fullest. When people with disabilities are not active, then their muscles get weak and it is very difficult to move around. Exercise is very crucial to a disabled person. There are many people with different disabilities so the exercises would be different for each person. Disabled people can walk, run, and jump, but there are also some limitations. For instance; they might be in a wheelchairs, or on crutches, or be unable to speak, hear, see, all of which may prevent them from doing enjoyable things outside.
There is a sense of good feelings to see a disabled person ride, cycle, or drive a horse and cart: especially for children who are in wheelchairs. There is a sense of freedom when a person can, accomplish a task on their own. They can feel free as a bird. Children need this freedom to enjoy all the pleasant things in life. When they get on a horse, or drive a horse and cart, the nicest thing, to see is their great big smiles on their faces as they fling their hands up in the air and vocalize their feelings of freedom.
There are some disabilities that are unbelievable, for example; Thalidomide people, who may have a stump for feet, and others have no arms. A person with no arms would do all their tasks with their feet. The disabled community needs to build up their stamina so that they can accomplish things in life.
When they learn to ride a horse it gives strength in their legs and back, because the movement of the horse will relax their backs. The exercise that is beneficial to them is to learn to stretch. This will help to loosen their muscles. Over time their muscles will strengthen. It will take a lot of work.
The most important thing to remember when working with a disabled person is to be very patient. Do not rush the movements because the person might get frightened.
Picture of an equestrian on horsebackIf the person is planning on horse back riding, for example, then s/he should be introduced to the animal and interact with it. The horse will then get used to any equipment the person uses. Then, you can teach the person to tack up the horse.
Now that the rider is aquainted with the horse, then you must aquaint him/her with the equipment that s/he will be using for mounting the horse. A mounting block is used for people in wheelchairs and people who are unable to climb stairs. Once the rider has been mounted, then the horse can be moved out of the ramp area very slowly so that the next rider can get mounted. The reason for moving slowly, is so that the rider will not get frightened for the first time. As soon as the horse starts moving, then the riders back will move slightly back and forward which will loosen their muscles.
I find horse back riding very enjoyable and relaxing as I'm sure many other people would if they gave it a try.

 *Editor's Note: Gillian does horse back riding in Maple Ridge through Pacific Riding for the Disabled Association (PRDA).

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LATIMER CASE BARES DEEP SCHISM OVER EUTHANASIA

by DIANA RINEHART

Was it the first step on a slippery slope that will make it easy to murder the disabled? Or a compassionate ruling taking into account the pain and suffering of a little girl and her father's compassionate decision to end her misery?
That is the debate raging across Canada today after Justice Ted Noble granted Saskatchewan farmer Robert Latimer a constitutional exemption from a mandatory 25-year Sentence for murdering his severely disabled daughter, Tracy. [The judge set aside the law and handed him a lenient sentence of two years less a day. The judge ruled that the mandatory sentence in this case would constitute "cruel and unusual punishment". Nobel  said Latimer should serve one year in a provincial jail and spend the remainder confined to his farm in nearby Wilkie. With good behaviour, Latimer's jail time could be only eight months.]
"If you can argue that you murdered a person. out of love and concern for them, that's a pretty big leap and I think you'll see quite a lot of lawyers looking to that for defence cases." says Margaret Birrell, executive director of the BC Coalition of People with Disabilities.
"It's going to put at risk children and adults with disabilities who are requiring extraordinary care," said Patty Gibson, director of communications at the BC Association of Community Living.
"They've looked at this and they've said; "Let's make murder easier. Let's allow individuals to determine whether or not someone should live or die."
Some also argue that the decision makes the disabled second-class citizens.
"This particular judgement that has taken place today has put into serious question the citizenship of people with disabilities in this country," said Gibson. "it has raised the question of whether or not we do value the lives of people with disabilities."
While some argue the ruling does not send a message that it is okay to kill the disabled, others contend that it leaves the door ajar.
But other experts on the issues of euthanasia, mercy killing and assisted suicide say the case is isolated and the judge simply. acted on the jury's request that an exemption to the mandatory sentence be made in Latimer's case.
And they argue the ruling does not send a message to anyone that it is okay to kill a disabled person.
"It strikes me that to rule out of hand as irrelevant the recommendation of a jury that this be treated as a special case ... is to ignore the basis of the jury system where we have consideration by nine persons who have no axe to grind whatsoever and we have to consider very carefully what went on," said Eike Kluge, chair of the department of philosophy at the University of Victoria and an expert on medical ethics.
"Does it send a message to anyone. .No....  The recommendation wasn't that anybody not be tried. But in this instance, on this occasion, using these facts, mercy should be shown."
Janet Storch, a director of the school of nursing at the University of Victoria who has worked with the Law Reform Commission on the issues of assisted suicide, cessation of treatment and euthanasia since the mid-70s agrees the decision is not likely to encourage other mercy killings.
"I guess I have enough belief in Canadian society as being a humane society .. to believe we are not on a slippery slope that suddenly is going to open the door to a whole lot of incidents of this sort."
Storch said the decision does not give out the message that it is okay to murder a disabled person.
"It's another clear statement to say this country still stands behind this law and the country is not leaning to say this is an appropriate action. But there are enough people saying they do understand how these things can occur." Storch said the country is sharply divided on the issue.
While the courts have consistently ruled that euthanasia, assisted suicide and mercy killing are not allowed in Canada, they have also tried to find a way to understand the complexity of the issues, she said.
"To try to find a way through something that is very regrettable, but in some ways understandable ... that some people feel these kinds of actions need to be taken."
But Grant Mitchell, the lawyer for People in Equal Participation Inc., whose daughter has cerebral palsy, said he is saddened by the decision and believes it. will lead to the murder of disabled children.
Mitchell says Latimer got enough of a break -"a tremendous break" -when the charge against him was reduced to second-degree murder from first degree though it was clear he planned the killing.
Now there is no deterrent to murdering the disabled, he argued.
Gibson said society should not be sympathetic to mercy killing in any circumstances. I don't think one should ever be able to kill out of love, she said, "What this has done is suggest that parents can now decide that they will forgo important medical treatment and take the step to end the child's life."
Gibson and Birrell both argued that the surgeries and pain Tracy Latimer underwent did not justify her father's decision. "The treatments open to Tracy Latimer are things that are done very often in the disability community," Birrell said. "The child did not have a terminal illness."
But Kluge said he finds it astonishing that anyone could argue that Tracy Latimer was not suffering and that suffering should not be taken into account.
"The very fact of existing injured her. And to continue would have been harm to her. Unfortunately for her she was not caught in a disease process that was going to kill her. If she was ... no cock would have crowed if her parents said, 'We've reached a point of no return, we're not going to accept any more medical treatment.' The mere fact that she was not moribund condemned her to this injury."
Reprinted from the December 2, 1997 Vancouver Sun.

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Merry Christmas & Happy "New Year" for 1998 to everyone from the Voice Office.

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Editor's Comments:

Tone of Voice is the newsletter of The Voice of the Cerebral Palsied of Greater Vancouver (VCP). The views and opinions expressed in the Tone of Voice are not necessarily those of the Board of Directors, The Newsletter Committee, or the Production Staff of the VCP. The articles presented herein are meant to be thought-provoking end stimulate dialogue. tone Of Voice is a forum for individual creativity end the generation of ideas from within the Cerebral Palsied community of British Columbia. This is your opportunity to share information and insights end to introduce issues and topics you feel should be brought to the attention of the Cerebral Palsied community and the general public. We invite your comments and criticism of any of the articles published here. We hope that you will contribute articles to share with other readers We want your stories, letters, announcements, poetry graphics and cartoons.

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Addresses & Production Staff

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The Voice of the Cerebral Palsied of Greater Vancouver
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Chairperson of the Board of Directors - Ted Nelson
Executive Director - Yoshinori Tanabe
Chairperson of the Newsletter Committee - Laurette Yelle
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Editorship - Newsletter Committee

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